Marfan Syndrome is a connective tissue disorder that effects many parts of the body. People with Marfans are typically tall, with long limbs and long thin fingers. The heart is the largest problem, the aorta in your heart is larger and weaker and there is a chance that is could tear. A aortic dissection is a very serious procedure and is not likely you will live. It also can affect the eyes and it causes very tall and lanky skeletal system. Marfans causes chest deformity and may cause lung problems. Marfans is a syndrome that effects much of the body, but is a problem that you can live with you just have to take care of it.

Twelve years old going to an ordinary sports physical. Thought i was going to just go in and out no problems. The doctor told me that I should go to another doctor and get checked out. I went and I was diagnosed with Marfans syndrome. I was shoked he told me that I am probably not going to be able to play sports any more. This kind of news destroyed me. I played all the sports, it was in the family we just all played sports. I was a little kid who thought everything bad was happining to me. I was lost, all i wanted is for it to be not true. I realised that I am still alive so live life every day as it comes and be happy with what ever it is.

I was born with marfan syndrome and I love it. Marfan syndrome is diffcult to live with. I take medication twice a day and I am noy supposed to let my heart rate go above 110 bpm. I cant do anything that could causes a contact with my chest. I do break the rules some to do things that I love like snowboarding. But I have to enjoy life some, but i just have to take care of myself. Marfan syndrome has a large impact on my life and is something not very many people know about.